Development and Evaluation of a Digital Education and Self-Management Program for Patients with Fibrotic Interstitial Lung Disease (FILD-MAP)

This project aims to develop and evaluate a blended education and self-management program for patients with fibrotic interstitial lung disease (FILD). Self-management programs aim to improve disease management for people with chronic illnesses. However, there is no such program for individuals affected by fibrotic interstitial lung disease. The goal of this project is to develop and evaluate a modern, digital training and self-management program for individuals with fibrotic interstitial lung disease, applicable in both inpatient and outpatient rehabilitation or care. The research project consists of three sub-projects. The first sub-project involves patient and expert interviews and a Delphi study to define the educational and self-management content, using a patient-centered co-development approach. The second sub-project encompasses the development of self-management modules based on the 'ADDIE' design model ('Analysis', 'Design', 'Development', 'Implementation', and 'Evaluation'), with patient-centered testing and feedback loops. In the third part, the complete program, developed using a blended learning approach, will be evaluated. The feasibility regarding treatment-related outcomes (satisfaction, applicability, acceptance, compliance) as well as study-related outcomes (recruitment success, dropouts, etc.) will be tested.

For more information on the project please visit the project website: here

Thomas Riegler, MSc, PhD cand., ZHAW, Winterthur (Project-Lead)
PD Dr. Anja Frei, EBPI, UZH
Prof. Dr. Milo Puhan, EBPI, UZH
Dr. phil. Thimo Marcin, Berner Reha Zentrum, Heiligenschwendi
PD Dr. med. Sabina Guler, Inselspital, Bern
Prof. Dr. Markus Wirz, ZHAW, Winterthur

Lungenliga Bern: Forschungsförderung