Swiss MS Registry: MS and Physiotherapy

This substudy of the Swiss MS Registry will assess the effects of specialized
MS multidisciplinary neurorehabilitation on well-being and disability progression,
based on data obtained at the Berneklinik Crans-Montana over the last two decades.
A first project aims to validate a novel disability measure, SaGAS 10, and to compare
it with other established scores. In a second project, we will explore the effect of rehabilitation among different groups of patients. A third project aims to study the long-term evolution of different disability measures in MS patients. Together, these studies may lead to improved measurement methods and enhance our understanding
of MS disease progression.

For more information and to participate please visit the Swiss MS Registry.

• Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis.
  Fortunato R, van der Maas NA, Biland-Thommen U, Kaufmann M, Sieber C, Kamm CP, Zecca C, Gobbi C, Chan A, Calabrese P, Kesselring J, von Wyl V; Swiss Multiple Sclerosis Registry.Mult Scler Relat Disord. 2021 Feb;48:102710. doi: 10.1016/j.msard.2020.102710. Epub 2020 Dec 23.
   
• Long-term worsening of different body functions in persons with progressive multiple sclerosis.
  Kaufmann M, Vaney C, Barin L, Liu X, von Wyl V.Mult Scler J Exp Transl Clin. 2020 Oct 13;6(4):2055217320964514. doi: 10.1177/2055217320964514. eCollection 2020 Oct-Dec.PMID: 33110620 Free PMC article.
   
• Recommended outcome measures for inpatient rehabilitation of multiple sclerosis are not appropriate for the patients with substantially impaired mobility.
  Barin L, Vaney C, Puhan MA, von Wyl V.Mult Scler Relat Disord. 2018 May;22:108-114. doi: 10.1016/j.msard.2018.04.001. Epub 2018 Apr 4.PMID: 29655044